Acoustic neuroma support Groups


Most of these groups are free and open to all

  • Our own ANworld mailing list currently about 170 patients. Information, discussion and support, by email, for acoustic neuroma patients by acoustic neuroma patients.
  • The web forum on the site of the ANA (Acoustic Neuroma Association (USA) 4000+ members
  • BANA web forum Small web forum reserved for members of BANA (the British Acoustic Neuroma Association)
  • Facebook groups There are several groups on Facebook. You must be a Facebook member to join but they are open to all members.
    • Acoustic Neuroma Association (ANA) group (327 members)
    • ACOUSTIC NEUROMA http://www.anausa.org/ (110 members)
    • Acoustic Neuroma / Vestibular Schwannoma Group (826 members). Lots of post-operation photos which are not very encouraging for newly diagnosed patients, and should be supplemented with more information and support.
  • ANAC Message board The Acoustic Neuroma Association of Canada Message Board (web forum). They also have local support groups which meet in various Canadian cities.
  • IJB social network It's Just Benign: a social network for people with any benign brain tumor, not just acoustic neuromas. (220 members)