The acoustic neuroma journey

A guide for acoustic neuroma patients

Acoustic neuroma acoustic neuroma acoustic neuroma... also known as vestibular schwannoma is a brain tumor (or tumour). If you have an acoustic neuroma or vestibular schwannoma brain tumor (or tumour) do not panic. An acoustic neuroma is a benign brain tumor (or tumour). Benign means that an acoustic neuroma is almost never cancerous. It is a very slow growing brain tumor. In almost 50% of cases an acoustic neuroma does not grow at all. If your acoustic neuroma or vestibular schwannoma has just been discovered, see our newbies section which explains the main symptoms and treatement options of acoustic neuroma in one short page.
Written by 4 acoustic neuroma patients : Kate, Kimberly, Chris, and Philip.

acoustic neuroma vestibular schwannoma acoustic neuroma

Acoustic neuromas are benign (non cancerous) tumors, but they require constant monitoring. Here is what you absolutely need to know about acoustic neuromas.

Recently diagnosed? You need a second MRI test about 6 months later. In the meantime study your options and determine your priorities. If the tumor is growing:

Decide what treatment you want. There are two options. The choice depends on the size and position of the tumor, but may also depend on personal data; medical, social, or financial.

Radiation treatment (GK or FSR) or Surgery (TL, RS, or MF)

If your tumor is growing very slowly or not at all, you might decide to choose conservative management (wait & watch).

For support and information, join the free acoustic neuroma support mailing list. We also conduct surveys of interest to AN patients. The first concerns tinnitus, the second headaches.

No medical decision should be based solely on information provided here. See disclaimer